Resource and support information for parents of children with sickle cell disease is now available on a new web page offered by the Oklahoma State Department of Health (OSDH).


Resource and support information for parents of children with sickle cell disease is now available on a new web page offered by the Oklahoma State Department of Health (OSDH). This user-friendly resource is designed to answer questions for parents and providers on sickle cell disease. Family support information, newborn screening brochures, and a voice response system for newborn screening results are among the many options available on the web page.

Sickle cell anemia is the most common form of sickle cell disease (SCD). SCD is a serious disorder in which the body makes sickle-shaped red blood cells. Sickle cells contain abnormal hemoglobin called sickle hemoglobin or hemoglobin S.

Annually in Oklahoma, 15 to 20 babies are identified with all forms of sickle cell disease. Newborn screening is frequently the first test to determine if a baby is at risk of sickle cell disease. If a baby is found to be at risk or has sickle cell, immediate care and treatment by a special medical doctor is needed. Medical management of these infants is done in collaboration with a pediatric hematologist.

“We’re delighted this web page is available for parents and medical providers. This is a great resource for families who have little to no knowledge of sickle cell disease. Through accessing this web page, sickle cell clients now know where to go and how to get assistance in time of need, and that’s a relief for a parent whose child is diagnosed with sickle cell,” said Linda Thomas, director of the Office of Minority Health at the OSDH.

To access the web page, visit http://sicklecell.health.ok.govhttp://sicklecell.health.ok.gov/>. Additional information about sickle cell disease is available by calling the OSDH Special Screening Service at (405) 271-6617. For information about minority health initiatives, call (405) 271-1337, or email minorityhealth@health.ok.gov.