A 9-year-old Shawnee boy diagnosed with prostate cancer last year is counting down the last four weeks of a 42-week course of chemotherapy.

A 9-year-old Shawnee boy diagnosed with prostate cancer last year is counting down the last four weeks of a 42-week course of chemotherapy.

His mother, Zona Storie, said he can’t wait to get back to “normal,” although with everything they’ve been through this past year, she said the question is, “What is normal?”

Before the diagnosis last December, Trevor Storie was a typical third grader who loved video games, watching cartoons and playing baseball and football. But when a severe stomachache and a trip to the emergency room turned into the discovery of Stage 3 Prostate Cancer-Rhabdomyosarcoma, everything changed.

Trevor, who is now in the fourth grade at North Rock Creek School, attends full days when he can and continues to take his treatments. 
For his parents, the diagnosis of cancer is still hard to imagine, although Zona said Trevor has been feeling good lately and is “his normal, ornery self.”

“To me, he’s just been amazing — he’s my hero,” she said, adding no matter what they face, Trevor still has a smile.

And even when he’s resistant to going through another round of chemotherapy, the positive always wins out.

“As soon as he’s done, he has a smile on his face,” she said. “He’s resilient and focuses on the good side of everything. He’s been really strong.”

And while this year has been a roller coaster of emotions at times, his mother said surprisingly, everyday moments that sneak up on them are even more special. She spoke of a story that brought tears to her eyes when Trevor came home from school recently with a blister on his hand.

“He proceeded to explain to me that he got it from the monkey bars,” she said, adding this wouldn’t have brought up a single thought a year ago.

Now, though, it was a tearjerker for this mom.

The blister was proof that Trevor was outside during recess, she said, and that he was playing with his friends and laughing. She said he is excited to be at school again.

Zona, who said Trevor hasn’t felt this good in a long time, said she has happy tears seeing her baby boy acting “like the old Trevor,” but admits it’s still hard to let go now that he’s feeling better.

“It’s like letting go of a toddler again,” she said.

During his treatments, Trevor has kept up his love for video games, but he also started taking golf lessons, his mother said, and seems to really enjoy golf.

Once he completes the last four weeks of treatment, Trevor will undergo further testing and Zona hopes those new screens show nothing.

She said Trevor is ready for his hair to start growing back. In fact, she said he has already informed her he’s not ever going to cut it.

Because prostate cancer is rare in a child, Zona said they’ve participated in many research studies and Trevor hopes his experiences also can help someone else.

“Whatever he can do to make a difference,” she said.

Odds of prostate cancer in children are rare — odds are less than 2 percent and about 350 cases are reported each year, Zona said.

In addition to fighting his own battle with cancer, Trevor also is working to bring awareness about childhood cancers, especially since September is both Childhood Cancer Awareness Month and Prostate Cancer Awareness Month.

Just last week, he visited with several of the Oklahoma Baptist University football players and issued a double challenge — with each of the players taking a pie to the face.

It was part of whipped cream to the face for “Whipping Out Childhood Cancer” awareness, a fundraising program that kicks off Monday. Much like the ALS ice bucket challenge, which Trevor has completed, people take a pie to the face for the cause. Trevor is already issuing challenges to help bring awareness and support for both childhood cancers and prostate cancer.

Because there’s been overwhelming support for Trevor and his family, a themed “Rock’em, Sock’em” support page is dedicated to Trevor and also keeps everyone updated on his progress.

Oftentimes, Zona said messages of hope from strangers has kept them going and provided inspiration when they need it most.

For more on Trevor’s journey or to find out more about his Whipping Childhood Cancer challenges, go to: https://www.facebook.com/rockemsockemtrevor